If you’re asking yourself “Williams What?” you’re are not the only one. Most people have never even heard of Williams Syndrome. In fact, only one in thirty GPs will see someone with Williams Syndrome in their whole career. I had certainly never heard of it until my daughter was diagnosed with WS at five months.
Williams Syndrome is a rare genetic condition that only occurs in about 1 in 20,000 births. People born with WS are prone to cardiac issues, lifelong health issues, learning disabilities, physical challenges, learning difficulties, social issues and ADHD. They tend to have outgoing personalities, have no fear of strangers and see everyone as a friend. They may also have a remarkable vocabulary and an affinity for music. Although my little girl hasn’t had cardiac issues yet, the rest of this description fits her to a T. She is absolutely the happiest kid around.
Due to the rarity of the syndrome, awareness is low and funding is almost non-existent here in Canada. So we’re throwing the happiest twitter party around to spread the word about Williams Syndrome and The Happiest Walk in Canada. We’ll be chatting about what Williams Syndrome is, about the #WSHappyWalk and how you can help spread awareness. Plus, you could win an iPad mini courtesy of Telus, an Instax mini8 camera from Fijifilm, and more. There are over $500 in prizes in total.
Or this one – a friend made for our family when Alma was just a baby.
See you Tuesday!
Melanie from mommydo.com writes about parenting, food, neat stuff and the unexpected beauty in life, all while juggling work, family life and spreading awareness and raising funds for Williams Syndrome.